CHOP Cov kws phais cais cais cov menyuam ntxaib uas tam sim no nyob hauv tsev

Pab pawg kws phais mob uas koom nrog ntau tshaj ob kaum tus kws kho mob tshwj xeeb, suav nrog cov kws phais dav dav, kws tshuaj tshuaj loog, kws kho hluav taws xob, kws phais mob plawv, thiab kws phais yas, siv sijhawm kwv yees li 10 teev cais cov ntxhais. Thaum cov menyuam ntxaib tau sib cais, pab pawg phais tau muab faib ua ob thiab rov tsim kho txhua tus ntxhais lub hauv siab thiab lub plab phab ntsa, siv cov txheej txheem mesh thiab cov txheej txheem phais yas kom ruaj khov rau txhua tus menyuam mos.

"Kev sib cais cov menyuam ntxaib ib txwm yog qhov nyuaj vim tias txhua tus menyuam ntxaib yog ib qho tshwj xeeb, thiab lawv txhua tus muaj cov kev sib tw sib txawv thiab kev xav txog lub cev," tus kws phais thawj coj Holly L. Hedrick, MD, tus kws kho mob menyuam yaus thiab tus menyuam hauv plab hauv Division of Pediatric General hais. , Thoracic and Fetal Surgery at Children's Hospital of Philadelphia. "Txoj kev uas peb pab neeg ua haujlwm ua ke, nws zoo kawg nkaus thiab tshwj xeeb, nrog ntau tus neeg tuaj koom ua haujlwm rau lub hom phiaj sib koom. Addy thiab Lily ua tau zoo, thiab peb txoj kev cia siab yog tias lawv muaj tag nrho lub neej uas muaj kev xyiv fab. "

Los ntawm Diagnosis mus rau Kev Xa

Addy thiab Lily txoj kev taug kev pib thaum lawv tau kuaj pom ua ntej ntawm lawv 20 lub lis piam teem caij ultrasound. Ua ntej lub sijhawm teem tseg, cov niam txiv Maggie thiab Dom Altobelli tau xav tias lawv muaj ib tus menyuam, tab sis daim duab ultrasound qhia tau tias tsis yog Maggie nqa ob lub fetuses tab sis lawv kuj tau txuas rau ntawm lub plab.

Conjoined ntxaib tsis tshua muaj, tshwm sim hauv tsuas yog 1 ntawm 50,000 yug. Cov khub niam txiv tau raug xa mus rau CHOP rau kev ntsuam xyuas ntxiv, txij li lub tsev kho mob tsuas yog ib qho ntawm ob peb lub tebchaws uas muaj kev sib cais cov menyuam ntxaib. Ntau tshaj 28 khub ntawm cov menyuam ntxaib tau sib cais ntawm CHOP txij li xyoo 1957, feem ntau ntawm txhua lub tsev kho mob hauv lub tebchaws.

Cov khub niam txiv tau ntsib nrog cov kws kho mob tshwj xeeb hauv CHOP's Richard D. Wood Jr. Center for Fetal Diagnosis and Treatment, qhov twg Maggie tau mus kuaj ua ntej yug menyuam los txiav txim siab seb puas muaj peev xwm cais tus menyuam ntxaib, raws li lawv txoj kev sib txuas thiab sib koom lub cev. Cov kws kho mob tau tshawb pom tias txawm hais tias cov ntxhais tau sib koom lub hauv siab thiab lub plab phab ntsa, diaphragm, thiab daim siab, cov menyuam ntxaib nyias muaj lub siab noj qab nyob zoo. Lawv daim siab sib koom kuj loj txaus los faib nruab nrab ntawm lawv, ua rau lawv cov neeg sib tw zoo rau kev sib cais.

Tom qab lub hlis ntawm kev npaj rau kev xa khoom pheej hmoo siab ntawm C-section, coj los ntawm Julie S. Moldenhauer, MD, Tus Thawj Coj ntawm Obstetrical Services, Addy thiab Lily tau yug los rau lub Kaum Ib Hlis 18, 2020 hauv Garbose Family Special Delivery Unit (SDU), CHOP's inpatient delivery unit. Lawv tau siv plaub lub hlis hauv Chaw Saib Xyuas Me Nyuam Tshiab / Me Nyuam mos (N / IICU), ua raws li rau lub hlis hauv Pediatric Intensive Care Unit (PICU). CHOP tus kws phais yas yas David W. Low, MD, muab cov tawv nqaij nthuav tawm kom ncab cov ntxhais cov tawv nqaij hauv kev npaj rau kev phais kev sib cais. Zoo li cov pob me me, collapsible balloons, cov tawv nqaij nthuav dav zuj zus los ntawm kev txhaj tshuaj, ncab daim tawv nqaij maj mam dhau lub sijhawm kom txhua tus ntxhais muaj daim tawv nqaij txaus los npog nws lub hauv siab thiab lub plab tom qab sib cais.

Kev phais mob

Thaum cov menyuam ntxaib nyob ruaj khov thiab muaj daim tawv nqaij txaus rau kev pab them nqi tom qab sib cais, lawv tau npaj rau kev phais. Ib hlis ua ntej kev phais, pab neeg phais tau ntsib txhua lub lim tiam, tshuaj xyuas cov duab ultrasound ib zaug ntxiv los kawm txog cov ntshav muab rau cov ntxhais lub siab, kom lawv tuaj yeem pom cov ntshav ntws thiab qhov twg cov ntxhais lub vasculature hla. CHOP cov kws tshawb fawb hluav taws xob tsim cov qauv 3D, uas tau muab tso ua ke zoo li Lego® daim, kom pab pawg kws phais tuaj yeem nkag siab txog kev sib raug zoo ntawm cov ntxhais sib koom lub cev thiab xyaum kev phais hauv kev taug kev, xws li kev hnav khaub ncaws hnav rau hnub phais.

Thaum Lub Kaum Hli 13, 2021, tom qab lub hlis ntawm kev npaj, Addy thiab Lily tau txais kev phais 10-teev thiab raug cais tawm ntawm 2: 38 teev tsaus ntuj Radiology tau nyob ntawm tes thaum lub sijhawm phais los piav qhia lub siab tseem ceeb nrog ultrasound. Thaum cov ntxhais sib cais, pab pawg phais tau faib ua ob thiab tau ua haujlwm ruaj khov rau txhua tus ntxhais thiab rov tsim nws lub hauv siab thiab lub plab phab ntsa. Stephanie Fuller, MD, kws phais mob plawv, ligated cov ntxhais patent ductus arteriosus thiab ua kom ob tug ntxhais lub siab nyob rau hauv txoj hauj lwm zoo thiab ua haujlwm zoo. Cov kws phais yas tau tso ob txheej ntawm cov mesh - ib ntus, ib qho mus tas li - hla cov menyuam ntxaib lub plab thiab hauv siab phab ntsa thiab tom qab ntawd npog cov tawv nqaij uas tau ncab ntau lub hlis thaum cov ntxhais nyob hauv PICU. 

Thaum cov ntxhais tawm ntawm kev phais, Maggie thiab Dom pom lawv cov ntxhais sib cais thawj zaug.

Maggie hais tias "Yuav pom lawv nrog lawv lub cev - lawv lub cev zoo tag nrho - nws zoo kawg nkaus," Maggie hais. "Nws tsuas yog indescribable."

Tsev rau Hnub So

Thaum Lub Kaum Ob Hlis 1, 2021, Altobellis thaum kawg tau ya mus tsev rau Chicago - ib tug ntxaib ntawm ib lub sij hawm, nrog ib tug niam txiv - tom qab nyob hauv Philadelphia tau ntau tshaj ib xyoos. Cov menyuam ntxaib tau siv sijhawm ob lub lis piam ntawm Lurie Children's Hospital nyob rau hauv kev saib xyuas ntawm pab neeg kho mob uas yuav txhawb nqa lawv nyob ze rau tsev. Cov ntxhais raug tso tawm tsuas yog nyob rau lub sijhawm Christmas thiab tuaj txog hauv tsev kom pom lawv lub vaj dai kom zoo nkauj los ntawm lawv cov neeg nyob ze. Lawv tau siv hnub so ua ke hauv tsev ua ib tsev neeg muaj plaub.

Addy thiab Lily ob leeg tseem muaj tracheostomy hlab thiab lub tshuab ua pa los pab ua pa, vim lawv yuav xav tau sijhawm los tsim cov leeg nqaij thiab kho ua pa ntawm lawv tus kheej. Nyob rau lub sijhawm, lawv yuav raug tshem tawm ntawm lub tshuab ua pa.

"Peb tab tom pib phau ntawv tshiab - nws tsis yog ib tshooj tshiab, nws yog phau ntawv tshiab," said Dom. "Peb pib ib phau ntawv tshiab rau cov ntxhais, thiab muaj ib phau ntawv Addy, thiab muaj phau ntawv Lily."

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